Press & Media

The Breathe for Bea Foundation has been featured on many other Cystic Fibrosis related websites and resources, newspapers, lifestyle websites, and more. For any media inquiries, requests or opportunities, please email us at [email protected].

 

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The Breathe for Bea Foundation has been listed on the CF Roundtable’s resources section as a recommended scholarship program. CF Roundtable is operated by USACFA, an independent 501(c)(3) non-profit, tax-exempt organization which is operated entirely by adult volunteers who have cystic fibrosis. The CF Roundtable publication, website, and social media sites offer critical sources of information for CF adults regarding the nature and progression of the disease, the latest treatments and research to fight CF, and many forums for CF adults to communicate with each other. You can email them at: [email protected]. They also award scholarships of up to $2,500 to adults with Cystic fFbrosis who are pursuing career certifications, associates, bachelors and graduate degrees. Application is here: goo.gl/LJxz7L.

 

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The Breathe for Bea Foundation has been listed on the Cystic Fibrosis Research Inc. website as a recommended scholarship program. CFRI is a 501(c)(3) charitable organization founded in 1975, that funds innovative CF research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers.

 

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The Breathe for Bea Foundation has been listed on NeedyMeds as a recommended assistance and scholarship program for Cystic Fibrosis patients. NeedyMeds is a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.

 

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We’ve been listed on the Cystic Fibrosis Family Connection’s website as a recommended assistance and scholarship program for Cystic Fibrosis patients. Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families. CFFC was founded as an umbrella for a variety of activities to help CF patients and their families cope with the challenges of this disease.

 

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We’ve been listed on the HHCS Health Group’s website, which operates a Florida-based CF Pharmacy to meet all CF medication needs, as a recommended assistance and scholarship program for Cystic Fibrosis patients.

 

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Check out a recent story about the origins of our Foundation in our local newspaper, the Carver Reporter. You’ll learn more about our inspiration, our mission and what we aim to accomplish with our Foundation, and a whole lot more.

 

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Check out our blog post on CysticFibrosis.com, written by Jesse DaCosta. CysticFibrosis.com is one of the world’s largest social media networks dedicated exclusively to the Cystic Fibrosis community. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.

 

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Check out our post on the Rock CF Foundation blog, written by Jesse DaCosta. Rock CF is a community thousands strong changing the face of what living with Cystic Fybrosis looks like and giving those living with CF the tools to not only survive, but thrive.

 

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Check out our post on the Cystic Fibrosis Lifestyle Foundation blog, written by Jesse DaCosta. CFLF assists in providing avenues toward healthy and active lifestyles through recreation, thereby educating people with Cystic Fibrosis on the critical psychological, social and emotional connections between their lifestyle and their health.

 

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Check out our post on the Cystic Fibrosis Foundation blog, written by Jesse DaCosta. This post was named as one of their top 6 most popular of 2017. The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for Cystic Fibrosis. They fund more CF research than any other organization, and nearly every CF drug available today was made possible because of their support.

 

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Check out our post on The Mighty, written by Jesse DaCosta. The Mighty is a digital health community created to empower and connect people facing health challenges and disabilities.

 

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Check out our post on She Can & She Did, written by Allison DiBona. She Can & She Did is storytelling platform dedicated to redefining what strength looks and feels like, created by Kelly Roberts.

 

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Check out our post on Patient Worthy, written by Jesse DaCosta. Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike.

 

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Check out our post on the Project CF Spouse blog, written by Jesse DaCosta. Project CF Spouse is a non-profit organization dedicated to educating and supporting spouses of those with CF. This community offers education and resources, in addition to the personal life experiences gleaned from the other members.

 

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We’ve been listed on the CF Cornerman’s website as a recommended resource for Cystic Fibrosis patients and their families. The website is run by a fellow CF spouse, Raymond Poole, who also has wrote a great book detailing the story of his wife’s fight with CF, lung transplant, and the lessons he learned from it.

 

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You can find us listed on Lifey.org’s list of top Cystic Fibrosis blogs. Lifey provides a unique way for people to create in-depth videos about their lives, while allowing people to browse and learn more about or from different people in the world.