Recently, members of Team Beastrong had the pleasure of visiting Vertex Pharmaceuticals in the Boston Seaport District. We were able to meet the scientists and staff that work tirelessly to eradicate Cystic Fibrosis and other devastating diseases, and tour their wonderful facility.
We wanted to share with you all another example of where your generous donations and support goes towards. Meet Allie, our most recent recipient of a hospital care package. Not only were we able to satisfy another request to try and make it “a good day for a good day” for a young CF patient, we were also able to make it to another state – this time Pennsylvania!
This past weekend, the Breathe for Bea Foundation held its first fundraiser of the year, a private Seascape Frame Creation evening lead by the lovely and talented Heather Sears at the MIY Studio in Plymouth, MA. The event sold out and was a big success! In addition to that, it was the largest class the Studio has ever had! We couldn’t be more proud of holding that distinction.
The Breathe for Bea Foundation is really on a roll these days! We’ve made a great deal of progress in just a couple of months, and we couldn’t be happier. We recently delivered our third care package, and at the same time made it to our third state! This most recent ask came in from Dani on behalf of her 11 year old granddaughter, Molly Claire, who lives in Tennessee.
As many of you know, May is Cystic Fibrosis Awareness Month and one of the big things that goes on during this month to raise awareness of this terrible disease and raise funds to hopefully one day find a cure is the CF Foundation’s Great Strides Walks. We participated in these last year shortly after Ashley passed away, and we were there once again this year. We wanted to share with you all some photos from the Great Strides Walk in Sandwich, MA that the Breathe for Bea Foundation attended on May 5th. We had a nice Team Beastrong representation and the weather was absolutely beautiful for the walk. We also were also able to meet some of the great folks at Vertex Pharmaceuticals, and will be taking a tour of their building in Boston in the near future. Stay tuned! And hopefully, we will have even greater numbers at the walk next year!
Last week, we were able to fulfill our second request for a care package and we wanted to share with you all just another example of where your generous donations to the Breathe for Bea Foundation goes towards. The ask came in from Beth, a mom to two teens with Cystic Fibrosis named Julie and Michael who live in New Jersey. Michael is 17 and a senior attending college in the fall, and Julie is 14 and a freshman in high school.
We wanted to share with you all an example of where your generous donations and support of the Breathe for Bea Foundation goes towards. Meet Blake, a local four year old boy from Massachusetts who was diagnosed with Cystic Fibrosis at three weeks old. Blake was admitted into the hospital a couple of weeks ago for a 14 day clean out. His parents Josh and Ashley reached out to our Foundation to let us know about Blake’s impending hospital stay, and what some of his favorite things are, including Paw Patrol and superheroes! Armed with this information, our Beastrong team went to work on putting together our first hospital care package for Blake to help try and make his stay a little more comfortable.
Exciting news today! The Breathe for Bea Foundation was featured on the front page of the Carver Reporter today, as well on their website. The story talks about the inspiration behind our Foundation – Ashley “Bea” Briggs – and how we hope to help and support other individuals and families who are fighting Cystic Fibrosis.
Being the incredibly thoughful person that she was, Ashley / Bea would often plan birthday festivities for others. Now, in her honor, we make sure to plan a special night to honor hers. So, for the second year in a row, a large group of family and friends descended upon East Bay Grille in Plymouth, Massachusetts on March 24th, 2018 to celebrate Bea’s birthday.
In January 2017, I was asked to run a 5K with a group of friends. I was told that “there’s beer at the end!” Ok, sure, I might run for beer I said. But, I still hesitated to actually register. Then Ashley / Bea went into the hospital, and her sister Emily said to me, “run it with me, run for Bea”. Knowing how Ashley grabbed life by the horns and didn’t let Cystic Fibrosis stop her, I signed up for the Mayflower Brewery St. Pats 5K for Bea. Little did I know what the following weeks would bring, just how much that first 5K race would change me, and how much it would mean to me.