The Breathe for Bea Foundation has sure been busy in recent weeks! Thanks to your generous donations, we were able to send out hospital care packages to CF patients all across the United States. You allowed us to be able to make it a “Good Day for a Good Day” for Karson in South Carolina, Bryce in Kentucky, Tyler in Ohio, and Dawn in Wisconsin!
This past Saturday, August 18th, 2018, friends and family of Ashley “Bea” Briggs gathered for a great day of fun – and some competition – at the 2nd Annual Breathe for Bea Volleyball Tournament. Her incredible spirit and love for the game were both celebrated, and we were also able to raise some funds for the Foundation which will allow us to continue to help and support individuals and families affected by Cystic Fibrosis. Just like last year, team slots filled up quick and we had an amazing turnout, with many donning Ashley’s favorite color blue!
The Breathe for Bea Foundation recently sent out its seventh care package, this time to a young man named Aaron in Illinois. Aaron is 29 years old, and has been battling Cystic Fibrosis since he was diagnosed at the age of two. We received a request for a care package from his cousin Wendy, who let us know that Aaron had been in and out of hospitals countless times over the years and had been recently admitted to the hospital in St. Louis, Missouri. She mentioned that he loves hunting and fishing, so we got to work on putting together a care package for him in hopes of bringing a little extra sunshine to his stay. I think we succeeded!
A few weeks ago, I ran the Tough Mudder in Charlton, Massachusetts with a few other members of Team Beastrong, and I’m so glad I pushed myself into doing it again this year. This was a hard decision for me and I was dreading it the entire week prior to the event. You see, my sister Ashley / Bea had participated in three of them before she passed away a year ago in March; Cystic Fibrosis never stopped her from doing things like the Tough Mudder. She always pushed me to try new things and I knew it would be hard to do it without her. However, with the help of some friends, we created a team to run it in honor of her.
Recently, members of Team Beastrong had the pleasure of visiting Vertex Pharmaceuticals in the Boston Seaport District. We were able to meet the scientists and staff that work tirelessly to eradicate Cystic Fibrosis and other devastating diseases, and tour their wonderful facility.
We wanted to share with you all another example of where your generous donations and support goes towards. Meet Allie, our most recent recipient of a hospital care package. Not only were we able to satisfy another request to try and make it “a good day for a good day” for a young CF patient, we were also able to make it to another state – this time Pennsylvania!
This past weekend, the Breathe for Bea Foundation held its first fundraiser of the year, a private Seascape Frame Creation evening lead by the lovely and talented Heather Sears at the MIY Studio in Plymouth, MA. The event sold out and was a big success! In addition to that, it was the largest class the Studio has ever had! We couldn’t be more proud of holding that distinction.
The Breathe for Bea Foundation is really on a roll these days! We’ve made a great deal of progress in just a couple of months, and we couldn’t be happier. We recently delivered our third care package, and at the same time made it to our third state! This most recent ask came in from Dani on behalf of her 11 year old granddaughter, Molly Claire, who lives in Tennessee.
As many of you know, May is Cystic Fibrosis Awareness Month and one of the big things that goes on during this month to raise awareness of this terrible disease and raise funds to hopefully one day find a cure is the CF Foundation’s Great Strides Walks. We participated in these last year shortly after Ashley passed away, and we were there once again this year. We wanted to share with you all some photos from the Great Strides Walk in Sandwich, MA that the Breathe for Bea Foundation attended on May 5th. We had a nice Team Beastrong representation and the weather was absolutely beautiful for the walk. We also were also able to meet some of the great folks at Vertex Pharmaceuticals, and will be taking a tour of their building in Boston in the near future. Stay tuned! And hopefully, we will have even greater numbers at the walk next year!
Last week, we were able to fulfill our second request for a care package and we wanted to share with you all just another example of where your generous donations to the Breathe for Bea Foundation goes towards. The ask came in from Beth, a mom to two teens with Cystic Fibrosis named Julie and Michael who live in New Jersey. Michael is 17 and a senior attending college in the fall, and Julie is 14 and a freshman in high school.