The Breathe for Bea Foundation is really on a roll these days! We’ve made a great deal of progress in just a couple of months, and we couldn’t be happier. We recently delivered our third care package, and at the same time made it to our third state! This most recent ask came in from Dani on behalf of her 11 year old granddaughter, Molly Claire, who lives in Tennessee.
As many of you know, May is Cystic Fibrosis Awareness Month and one of the big things that goes on during this month to raise awareness of this terrible disease and raise funds to hopefully one day find a cure is the CF Foundation’s Great Strides Walks. We participated in these last year shortly after Ashley passed away, and we were there once again this year. We wanted to share with you all some photos from the Great Strides Walk in Sandwich, MA that the Breathe for Bea Foundation attended on May 5th. We had a nice Team Beastrong representation and the weather was absolutely beautiful for the walk. We also were also able to meet some of the great folks at Vertex Pharmaceuticals, and will be taking a tour of their building in Boston in the near future. Stay tuned! And hopefully, we will have even greater numbers at the walk next year!
Last week, we were able to fulfill our second request for a care package and we wanted to share with you all just another example of where your generous donations to the Breathe for Bea Foundation goes towards. The ask came in from Beth, a mom to two teens with Cystic Fibrosis named Julie and Michael who live in New Jersey. Michael is 17 and a senior attending college in the fall, and Julie is 14 and a freshman in high school.
We wanted to share with you all an example of where your generous donations and support of the Breathe for Bea Foundation goes towards. Meet Blake, a local 4 year old boy from Massachusetts who was diagnosed with Cystic Fibrosis at 3 weeks old. Blake was admitted into the hospital a couple of weeks ago for a 14 day clean out. His parents Josh and Ashley reached out to our Foundation to let us know about Blake’s impending hospital stay, and what some of his favorite things are, including Paw Patrol and superheroes! Armed with this information, our Beastrong team went to work on putting together our first hospital care package for Blake to help try and make his stay a little more comfortable.
Exciting news today! The Breathe for Bea Foundation was featured on the front page of the Carver Reporter today, as well on their website. The story talks about the inspiration behind our Foundation – Ashley “Bea” Briggs – and how we hope to help and support other individuals and families who are fighting Cystic Fibrosis.
Being the incredibly thoughful person that she was, Ashley / Bea would often plan birthday festivities for others. Now, in her honor, we make sure to plan a special night to honor hers. So, for the second year in a row, a large group of family and friends descended upon East Bay Grille in Plymouth, Massachusetts on March 24th, 2018 to celebrate Bea’s birthday.
In January 2017, I was asked to run a 5K with a group of friends. I was told that “there’s beer at the end!” Ok, sure, I might run for beer I said. But, I still hesitated to actually register. Then Ashley / Bea went into the hospital, and her sister Emily said to me, “run it with me, run for Bea”. Knowing how Ashley grabbed life by the horns and didn’t let Cystic Fibrosis stop her, I signed up for the Mayflower Brewery St. Pats 5K for Bea. Little did I know what the following weeks would bring, just how much that first 5K race would change me, and how much it would mean to me.
Shortly after my fiancée, Ashley, told me about her cystic fibrosis, we were engaged. Months later, she passed away, leaving me to figure out what I could have done differently and how to cope.
Today truly is a good day for a good day! The Breathe for Bea Foundation is officially incorporated as a non-profit organization! We are extremely excited and want to thank each and everyone of you that has shown us love and support since Bea’s passing in early 2017, and continues to do so. We are truly grateful.
Thanks for visiting the Breathe for Bea Foundation blog. Here we share stories about our cherished Ashley “Bea” Briggs, the latest on what’s going on at the Foundation, event updates and recaps, personal experiences with Cystic Fibrosis, and a whole lot more.
If you are interested in writing for the Breathe for Bea Foundation blog, please contact Jesse DaCosta at [email protected].